1.What are the HRQOL outcomes in comparisonto their age matched normal siblings?
2.What are the predictors of these outcomes?
3.What are their health related experiences?
The investigators have thus far successfully enrolled 250 patients with ~ 70 of those having ACHD. Data collection is complete and analysis is ongoing. Data collection is complete and analysis is ongoing.
Laila Akbar Ladak, professor Robyn Gallagher, dr. Babar Hasan, and associate professor Janice Gullic are the principal investigators. For further information please contact dr. Ladak (firstname.lastname@example.org).